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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Posted by
Marci Scher
12 Things I Wish I’d Known About Being a Special Needs Parent
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Posted by
Marci Scher
2 Years and Happy New Year
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Posted by
Marci Scher
Dear Sibling to a Child With Special Needs, Let Me Tell You Why You're Amazing
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Posted by
Marci Scher
Isaac is Worn Out
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Posted by
Marci Scher
Toilet Paper oh Toilet Paper
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