Search This Blog
Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
Posts
Showing posts from July, 2015
Posted by
Marci Scher
Signed, Sealed and Delivered
- Get link
- X
- Other Apps
Posted by
Marci Scher
The Most Wonderful Place on Earth
- Get link
- X
- Other Apps
Posted by
Marci Scher
SMA and PCH - A rough weekend
- Get link
- X
- Other Apps
Posted by
Marci Scher
One Down - One to Go
- Get link
- X
- Other Apps
Posted by
Marci Scher
Follow - MD Appointments
- Get link
- X
- Other Apps
Posted by
Marci Scher
The Bob Marley Quote I'd Go Back and Tell Myself When My Daughter Was Diagnosed....by Terra Atkinson
- Get link
- X
- Other Apps
Posted by
Marci Scher
Another Year...6 Years....3 Years
- Get link
- X
- Other Apps