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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Showing posts with the label ER
Posted by
Marci Scher
Legos for a Child With a Hole in His Heart
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Posted by
Marci Scher
Back At Hopkins January 6, 2013
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Posted by
Marci Scher
Our Journey Continues July 4th, 2009
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