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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Showing posts with the label Ian
Posted by
Marci Scher
4th Yahrzeit - 12 Elul - September 1 - September 15
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Posted by
Marci Scher
Twinless In Ohio - This Week - Twinless In Alabama
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Posted by
Marci Scher
In Honor Of Ian's 16th Birthday -- A Letter from Danny
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Posted by
Marci Scher
Does My Grief Make You Uncomfortable? Me Too.
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Posted by
Marci Scher
Happy 9th Birthday!!!!
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