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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Showing posts with the label cough assist
Posted by
Marci Scher
PICU - January 7-8, 2013
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Posted by
Marci Scher
Hopkins Day Two - January 7, 2013
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Posted by
Marci Scher
Back At Hopkins January 6, 2013
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Posted by
Marci Scher
Camp Oest 7/11 - 7/14 2012
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