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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Showing posts from March, 2013
Posted by
Marci Scher
We Are Back ...
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Posted by
Marci Scher
After 10 1/2 weeks
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Posted by
Marci Scher
According to....
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Posted by
Marci Scher
A Visit With...
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Posted by
Marci Scher
Weekend Update
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Posted by
Marci Scher
As The Journey Ends - Brian
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