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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Showing posts with the label sorrow
Posted by
Marci Scher
A Letter To My Children As We Enter A New Decade
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Posted by
Marci Scher
7 Things I've Learned Since the Loss of My Child
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Posted by
Marci Scher
Happy 15th and 2nd Heaven Birthday - Silver Lining
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