Thursday, October 8, 2015
Tuesday, October 6, 2015
Friday, October 2, 2015
This morning started off early at Mount Washington Pediatric Hospital at the Wheelchair Clinic. We got to see a few faces we haven't seen in a long time, Ms. Sharon, Ms. Kathy, Ms. Trish and Mr. Craig. Over the years, we have worked with all of them for many different reasons. Today it was looking at modifications on Ian's wheelchair. He sits ok in his current chair but since his surgery modifications definitely need to be made. We are hoping for a new set of wheels, back piece, and headrest. The biggests obstacle will be insurance, here is to hoping that they give authorization quickly and with out questions.
This afternoon, we went to see orthopedic for his shoulder. X-rays were taken ... It is showing signs of healing. He can stay in the sling for comfort and we don't have to go back.
Woo hoo, two good appointments. Now it's time to stay in and out of the wet.
Wednesday, September 30, 2015
According to The Foundation for Children with Microcephaly....
Microcephaly means small (micro) head (cephaly). It is a neurological disorder where the head circumference is less than it should normally be in an infant or a child. The condition can be present at birth or develop within the first few years of life. Most parents do not know why their child has microcephaly and may never know the cause - even with advanced genetic testing. The most difficult thing we have found is each and every case of microcephaly is different. Some children have mild to moderate delays, while others have severe delays. Most of the time there is no way to know how your child diagnosed with microcephaly will develop. In some cases delays are apparent right away, and in others delays won't show up until after a year old. So the only thing that we as, parents, can do is just try to help our child progress, enjoy every moment with your child and take life day by day - trying not to worry about all of unanswered questions (which is must easier said than done).
Tuesday, September 22, 2015
Sunday, September 20, 2015
Over the past 3 weeks...I would like to say things happen in 3's and then you are done.
3 weeks ago our stove went up...ok, easy not so inexpensive fix, a new stove.
Last week, our microwave went up. Ok so another easy fix...a new microwave.
Well today, we headed down to the Pasadena area for a Chai Lifeline end of the summer family BBQ. We had a great time, Becca went on a jet ski, swimming, both kids went fishing. It was beautiful weather. Time to come home, we are 5-10 minutes into the ride and Brian said the temperature light comes on and then we start to see smoke from under the hood...the 3rd thing...our van breaking down. Thanks to my wonderful cousin, who also happened to be at the BBQ, the kids and I got home safely whole Brian waited with the van for the tow truck. Tomorrow we find out how easy and I'm sure not so inexpensive this fix is.
I know this is all just stuff, just frustrating and interferes with life.
I believe things happen on 3's. ..ok I'm done.