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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Showing posts with the label advocate
Posted by
Marci Scher
Rare Disease Day 2020 - Parents, Patients, Doctors
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Posted by
Marci Scher
Keep Your Eye on the Ball
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Posted by
Marci Scher
Empowerment As A Mom - Empowering My Twins - Becca and Ian
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Posted by
Marci Scher
Legos for a Child With a Hole in His Heart
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Posted by
Marci Scher
A Tribute on the PCH Warriors and Advocates Facebook Page
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Posted by
Marci Scher
We Are the Sisterhood of Mothers With Medically Fragile Children
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