Search This Blog
Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
Posts
Showing posts with the label kids
Posted by
Marci Scher
Doctor Asks Terminally Ill Children What Truly Matters in Life...Their Answers Are Incredibly Wise
- Get link
- Other Apps