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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Showing posts with the label disability
Posted by
Marci Scher
You Are Not Alone -- For Parents When They Learn Their Child Has A Disability
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Posted by
Marci Scher
When You're the Parent of a Kid With a Disability, It's Hard to Accept Help
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Posted by
Marci Scher
Why This Photo Series of Babies With Disabilities Has the Power to Be Revolutionary
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Posted by
Marci Scher
15 Months - Shalva
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