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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Showing posts with the label pediatric patients
Posted by
Marci Scher
Doctor Asks Terminally Ill Children What Truly Matters in Life...Their Answers Are Incredibly Wise
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