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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Showing posts with the label Family
Posted by
Marci Scher
30 Small, Simple, Yet Extremely Beneficial Parenting Tasks
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Posted by
Marci Scher
Eight Things Siblings of Children with Special Needs Struggle With
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Marci Scher
A Framework for the Difficult Decisions
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Posted by
Marci Scher
Doctor Asks Terminally Ill Children What Truly Matters in Life...Their Answers Are Incredibly Wise
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Posted by
Marci Scher
Empowerment As A Mom - Empowering My Twins - Becca and Ian
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Posted by
Marci Scher
Happy 15th and 2nd Heaven Birthday - Silver Lining
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Marci Scher
JScreen - Pontocerebellar Hypoplasia Type 1A
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Posted by
Marci Scher
10 Things That Make Families Happier
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Posted by
Marci Scher
Second Thanksgiving
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Posted by
Marci Scher
Some recent pictures ...
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Posted by
Marci Scher
Dreams do come true....Spiderman
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