Search This Blog
Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
Posts
Showing posts with the label statistics
Posted by
Marci Scher
My Message as a Researcher to Anyone With a Rare or Undiagnosed Disease
- Get link
- X
- Other Apps