Thursday, June 23, 2016


Schools out, your sister is in Alaska on vacation, what is a boy to do? No need to worry Chai Lifeline will take care of you. They arrived with the canvas, balloons, paint, darts, and ready to have fun. All Ian knew is that they had a surprise for him, well he was okay with that until it was time for it to happen and then he got "scared". Not knowing what to expect, photos were taken of his friends setting up, shown to Ian so he could relax a little bit.

Balloons filled with paint were tacked to the canvas, more paint was poured onto of the balloons and the masterpiece was started. Dart after dart was thrown at the balloons. Balloons pooped and paint went everywhere...all over the canvas, the chair and the grass. Oh yeah and on Ian and his friends.  

Ian and Jared, his big brother

Mommy and Daddy to into it and trying throwing some darts as well.

Ian and his friends....they are all still pretty clean, the paint fight happened after the masterpiece was done.

The masterpiece is still drying and we are hoping we can find the tape under all the paint to get to Ian's name.

Then came Ian's super hero blanket. Last week Ian and Jared, used an app to come up with a super hero for Ian. It was then transformed into a blanket!

Way to go Super Ian!

Tuesday, June 14, 2016

As I lay in bed, my heart hurts. Today was a rough day for many different reasons. First, let me say that Ian's ok and he's been having good days.

We have had some things going on lately which have made me realize not all people are good. Well I've known it but it was just reinforced. In time those people will get theirs. Karma people, karma. 

Today, both the SMA world and PCH world each lost a child. Two in one day, bamb hit me right in the face. One was quick, sudden. The other wasn't, over the past few days the family watched their child actively pass away. On Facebook, I am part of a SMA group as well as a PCH group so I read when kids pass away from these horrible diseases. Today really hit me, harder than it has in a long time. I am trying to find comfort knowing the kids are not in pain anymore. But the families are in a different kind of pain then they were before, one I know one day I will have to endure. I'm not ready for it, I don't know if I'll ever be ready for that pain.  Every day, there is pain, watching your child be in pain, knowing there is not much you can do to make it better. The pain will be different.

As I lay here, awake, when I should be sleeping,  my heart aches. For those families who lost their children today. My heart aches for my family as we know one day we will lose ours. For now I'm going to try to get some sleep and wake up tomorrow to a new day. One which I will treasure, dream, and live.