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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Showing posts with the label love
Posted by
Marci Scher
The Days Our Lives Changed...
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Posted by
Marci Scher
SPECIAL NEEDS MOM - a look inside
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Posted by
Marci Scher
A PLEA FROM A PARENT WITH A CHILD WHO HAS SPECIAL NEEDS
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Posted by
Marci Scher
Grief and The Fear of Letting Go
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Posted by
Marci Scher
11 LIFE CHANGING LESSONS TO LEARN FROM BUDDHA
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Posted by
Marci Scher
Let Me Tell You Who I Am Now
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Posted by
Marci Scher
How the fear of dying taught me how to live
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Posted by
Marci Scher
Doctor Asks Terminally Ill Children What Truly Matters in Life...Their Answers Are Incredibly Wise
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Posted by
Marci Scher
Does My Grief Make You Uncomfortable? Me Too.
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Posted by
Marci Scher
7 Things I've Learned Since the Loss of My Child
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Posted by
Marci Scher
An Instagram Post by Becca
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Posted by
Marci Scher
A Hard April....For Always
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Posted by
Marci Scher
As We Approach 548 (18 months) Days
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