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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Showing posts with the label PCH1A
Posted by
Marci Scher
Fuck Rare Disease
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Posted by
Marci Scher
A Letter To My Children As We Enter A New Decade
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Posted by
Marci Scher
A Tribute on the PCH Warriors and Advocates Facebook Page
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Posted by
Marci Scher
15 Months - Shalva
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Posted by
Marci Scher
A New Normal...Diagnosis
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