Friday, September 14, 2012

New "Normal" Again

The past few weeks have brought some changes to "our normal". School started; Becca and Ian both have new teachers.  All of us were a little anxious about this....but they have all been wonderful.  The week before school started I had a meeting with all of the Forest and Ocean team teachers, to give a medical update to those teachers who had Becca and/or Ian last year and the new teachers all the information they needed in order to teach/care for both kids. Some good ideas were put into place from this meeting and everyone was excited for the year to start the following Monday. The 1st three weeks have been great for the kids.

Becca is having a hard time adjusting to the "strictness" of the we have told her, she will have to get used to and adjust. We will continue to work with her....

Ian is doing well and has been adjusting nicely. All of the staff he has at school is the same, except for his teacher. He is enjoying learning from Miss B.

Another change for us this school year, we the loss of our Stephanie...she has gone back to school to become a dental hygienists. From her messages, she is quite busy. We started using Play Keepers for the days Stephanie was with us. That has been going well, just some getting used to for all of us. I am hoping once the High Holy Days are over and work has calmed down a bit for me, more normalcy will come into play with our evenings.

To add to our normal, another piece of equipment has entered our home.
This is Ian's new C-Pap is taking some adjusting on all of our parts, especially Ian. The first few nights he used it for about an hour and a half each. The beginning of this week I spoke with the wonderful nurse from our pulmonary office, her advice along with the advice of two other wonderful mom's whose kids use Bi-Pap machines, have made the last few nights a little easier. As with everything, time will make the use of the C-Pap easier and it will just be another piece of equipment in our lives.

With winter coming and flu season upon us, here are some ways to protect yourself and those you love from exposure to influenza, including:

•Educate family members and roommates about the heightened risk of seasonal and H1N1 influenza for those with neuromuscular disease, and the importance of staying away from others who are experiencing flulike symptoms.

•Promote good hand hygiene among everyone in your home, which means washing hands with soap and water for at least 20 seconds (the time it takes to sing “Happy Birthday” twice), especially after coughing or sneezing. Alcohol-based hand sanitizers containing at least 60 percent alcohol also are effective.

•Encourage everyone in your home to practice respiratory etiquette by covering coughs and sneezes with tissues or with your arm. Dispose of tissues in a waste receptacle after use.

•Among your roommates and/or immediate family members, stress the importance of not sharing utensils and drinking cups, and encourage them to avoid touching their faces, especially after handling shared items such as telephones or remote controls.

•Educate yourself about symptoms of the flu — fever, cough, sore throat, body aches, chills and fatigue. Diarrhea and vomiting also may be experienced. Contact your physician as soon as possible if you develop flulike symptoms.

•Visit the CDC’s website and for additional tips and recommendations.

This Sunday night starts Rosh Hashanah...L'Shana Tova -- "To a Sweet Year" to all. Healthy Year for all.

Wednesday, September 12, 2012

Benefit Thirty-One and Slumber Party for Ian

There are not enough words to say thank you in advance to Irina, Alana and Susan for putting this together to help Brian and I continue to help Ian...his medical expenses continue to grow as his condition continues to change...
Come Join Us to Raise money AND have an absolutely fabulously fun time... and get a BUZZZZZZZZZZZZZ (literally)! LOL  
When:      Thursday, October 25, 2012
Time:       7:00pm
Where:     7936 Starburst Drive, 21208

It's a HOT HOT HOT ladies night in with a fabulous and fun party presented by Irina Brusilovsky with Slumber Parties and Alana Gray from Thirty-One Gifts. You will experience the latest and greatest in luxurious totes, handbags, purses, lingerie, books, games, massage oils, edible lotions, and love enhancement products.

Every Thirty-One style was designed with you in mind. They’re all solutions that make your life a little easier. Whether it’s style, organization, the perfect giftable item — or a little bit of everything — you’ve come to the right place!

From totes or purses you can wear while you’re out and about, thermals to help you transport food and drinks to a party, or organizational items to help you keep your house neat and tidy, Thirty-One has a solution! Thirty-One will have you beliving in styles that fit you perfectly.

Slumber Parties carries something for everyone… something for you, your lover, and your 90 year old grandmother. Get ready to laugh and learn some new tricks as Irina tastefully presents all of the goodies. Irina can easily get your shopping done that night for birthdays, anniversaries, and beyond.

Don't forget that a portion of your sales will go towards covering expenses for Ian Scher. 
Can't wait to see you soon!

If you can't come that's okay you can still order online or thru the catalog...more information to follow on that in October. Please let me know if you are interested in attending so we can add you to the count....if you don't want to post on here then email me to let me know....thank you all...

The love and support we have received over the years has helped us to continue to help us thru the journey to our constantly changing normal.

Thursday, September 6, 2012

One of the best feelings!

One of the best feelings, going downstairs in the morning; Ian's  laying on the sofa watching TV. I give him a huge hug, he says "I love you".  I say "And I love you". Ian turns to me and says, "No Mommy I love you more".