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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Showing posts from March, 2018
Posted by
Marci Scher
"I Believe: To Kill a Mocking Bird" by Becca Scher
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Posted by
Marci Scher
Scientists Explain: Parents Who Raise 'Successful' Kids Do These 8 Things Differently
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Posted by
Marci Scher
Coping with the Conflicting Emotions of Grief
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Posted by
Marci Scher
7 Things Every Child Needs to Hear
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Marci Scher
As We Approach 548 (18 months) Days
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Marci Scher
Helping a Teenager Deal with Grief
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Posted by
Marci Scher
RARE DISEASE DAY 2018
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