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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Showing posts from September, 2018
Posted by
Marci Scher
64 Things Times Two - The Best and Worse Things to Say
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Posted by
Marci Scher
Good Grief Support Isn’t Just a One Time Thing
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Posted by
Marci Scher
730 Days - Make Your Life Beautiful
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Posted by
Marci Scher
Giving Children Control in Their Care Choices
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