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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Showing posts from June, 2019
Posted by
Marci Scher
15 Memes That Nail What It's Like Working With a Chronic Illness
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Posted by
Marci Scher
WONDER - By Brian
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Posted by
Marci Scher
HAPPY FATHER'S DAY - Bereaved Fathers are the Bravest Dads
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Posted by
Marci Scher
Mourning the Passage of Time
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