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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Posted by
Marci Scher
Finally an update....
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Posted by
Marci Scher
How are we doing and where are we going....
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Posted by
Marci Scher
Happy New Year to All
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Posted by
Marci Scher
Dreams do come true....Spiderman
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Posted by
Marci Scher
Where we are headed...
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Posted by
Marci Scher
Going back to the beginning....maybe
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