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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Marci Scher
64 Six Word Stories About Grief
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Marci Scher
64 New Year's Resolutions for Grievers
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Marci Scher
When You're the Parent of a Kid With a Disability, It's Hard to Accept Help
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Marci Scher
10 Things Having a Rare Disease Isn't
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Marci Scher
Grateful and Grieving
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Marci Scher
You Didn't Deserve To Die
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Marci Scher
Choosing how you want to live…and die -- National Hospice and Palliative Care Month
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Marci Scher
Why This Photo Series of Babies With Disabilities Has the Power to Be Revolutionary
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Marci Scher
Another Sleepless Night - Brian
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Marci Scher
The Hard Truth About Staying Married After Losing a Child
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