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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene

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Posted by Marci Scher February 18, 2018

Imagine Getting...

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Posted by Marci Scher February 18, 2018

A Tribute on the PCH Warriors and Advocates Facebook Page

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Posted by Marci Scher February 17, 2018

When Someone You Love Dies, There's No Such Thing As Moving On

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Posted by Marci Scher January 30, 2018

JScreen - Pontocerebellar Hypoplasia Type 1A

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