Ian took a few steps today, unassisted, Becca's face was priceless as she screamed for me to come and take a look...:-)
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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
So awesome, Marci! And so great that they look out for each other.
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