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Monday, May 7, 2012

Pushy Parents

Proud to be a pushy parent....maybe, just maybe...once a diagnosis is found....we can do something to help others....or maybe we will become a WISER pushy parent...
http://journals.lww.com/neurologynow/Fulltext/2012/08020/Too_Rare_for_Research__People_with_rare_diseases.18.aspx

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