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Friday, September 14, 2012

New "Normal" Again

The past few weeks have brought some changes to "our normal". School started; Becca and Ian both have new teachers.  All of us were a little anxious about this....but they have all been wonderful.  The week before school started I had a meeting with all of the Forest and Ocean team teachers, to give a medical update to those teachers who had Becca and/or Ian last year and the new teachers all the information they needed in order to teach/care for both kids. Some good ideas were put into place from this meeting and everyone was excited for the year to start the following Monday. The 1st three weeks have been great for the kids.

Becca is having a hard time adjusting to the "strictness" of the teachers...as we have told her, she will have to get used to and adjust. We will continue to work with her....

Ian is doing well and has been adjusting nicely. All of the staff he has at school is the same, except for his teacher. He is enjoying learning from Miss B.

Another change for us this school year, we the loss of our Stephanie...she has gone back to school to become a dental hygienists. From her messages, she is quite busy. We started using Play Keepers for the days Stephanie was with us. That has been going well, just some getting used to for all of us. I am hoping once the High Holy Days are over and work has calmed down a bit for me, more normalcy will come into play with our evenings.

To add to our normal, another piece of equipment has entered our home.
This is Ian's new C-Pap machine....it is taking some adjusting on all of our parts, especially Ian. The first few nights he used it for about an hour and a half each. The beginning of this week I spoke with the wonderful nurse from our pulmonary office, her advice along with the advice of two other wonderful mom's whose kids use Bi-Pap machines, have made the last few nights a little easier. As with everything, time will make the use of the C-Pap easier and it will just be another piece of equipment in our lives.

With winter coming and flu season upon us, here are some ways to protect yourself and those you love from exposure to influenza, including:


•Educate family members and roommates about the heightened risk of seasonal and H1N1 influenza for those with neuromuscular disease, and the importance of staying away from others who are experiencing flulike symptoms.

•Promote good hand hygiene among everyone in your home, which means washing hands with soap and water for at least 20 seconds (the time it takes to sing “Happy Birthday” twice), especially after coughing or sneezing. Alcohol-based hand sanitizers containing at least 60 percent alcohol also are effective.

•Encourage everyone in your home to practice respiratory etiquette by covering coughs and sneezes with tissues or with your arm. Dispose of tissues in a waste receptacle after use.

•Among your roommates and/or immediate family members, stress the importance of not sharing utensils and drinking cups, and encourage them to avoid touching their faces, especially after handling shared items such as telephones or remote controls.

•Educate yourself about symptoms of the flu — fever, cough, sore throat, body aches, chills and fatigue. Diarrhea and vomiting also may be experienced. Contact your physician as soon as possible if you develop flulike symptoms.

•Visit the CDC’s website and Flu.gov for additional tips and recommendations.

This Sunday night starts Rosh Hashanah...L'Shana Tova -- "To a Sweet Year" to all. Healthy Year for all.

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