Last night and today have been good, again the goal is to still keep Ian comfortable and calm. He has slept on and off most of the day....I would think that is from the infection...yes he does have another one....so it's a good thing they started him on the other antibiotics the other day. The x-ray from this morning shows and completely different left lung then the one from yesterday morning. It was much clearer and only appears to have a small section which is still collapsed. So being on the vent seems to be helping as the doctors were hoping. At this point, they are talking about keeping Ian intubated for at least another day or two. This is a risk for Ian, as his lungs are weak and the longer her is intubated the harder it will/may be to get him extubated. With this in mind, we are planning on having a meeting with all the necessary players....PICU, Pulmonology and ENT, to discuss our options and for us to learn more about the prospect of a trach. Ian has gotten good at communicating with his eyes to let us and the nurses know what he needs; as well as we have been showing them all of his likes and dislikes....they are getting good and remembering them. Ian is as comfortable as he can be, they do have him lightly sedated to help with any discomfort he may be having from the intubation tube.
As for the rest of us....we are taking it day by day, we have been keeping Becca updated....in her language and terms on any major changes. She does know that he has a tube helping him to breath. When I was talking with her tonight, she asked me if it was in his neck...I told her no but that lead into the trach and that he may have to have one. So we talked a little bit about that, looked up on the internet pictures of people intubated and people with trachs. Then she said she needed to see a picture of Ian, so Daddy took one and sent it our way. She was very happy to see him but said she wants to see him in person not just in pictures....told her I know and gave her a long hug....then like any 9 year old...she wanted to know if she could play on the computer. So as I sit here and update the blog on my precious little boy, my precious little girl is sitting next to me playing a monster high dress up game.
XO to all.