Tuesday, January 29, 2013

Well today started off with rounds which weren't great. Ian's left lung has collapsed a little bit again. We were all very excited yesterday with his x-ray and then came the one this morning. So they did not make any changes, no sprints today, all medicines stayed the same. Ian's moods have been up and down, I guess you can't expect anything different, we are trying very hard to work with that and keep his spirits up. I had an IEP meeting to start the process of Home and Hospital, I am hoping once this starts it will help Ian's moods. In addition, we will be meeting the doctors tomorrow, the PICU doctors, the Pulmonologist and the ENT's to discuss next steps. We don't know what lies ahead of us but we will continue to take everything one day/step at a time. 

Everyone have a good night....

Comments

  1. Marci & Brian. Ian and your family are in our thoughts and prayers!

    If we can help with anything please contact me.

    Angie (from TRP, Michelle's Mom)

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  2. Please send Ian our love. We are thinking about you and your family and sending healing thoughts your way!

    The Dardick's

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  3. oh yes, because school cheers kids right up! :) I bet that a return to any kind of normalcy and/or some good distraction would help with his mood. We miss Ian at school! Shannon A.

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  4. Stacy Berman Lunenfeld I hope Ian saw our video from scouts!! We all really miss him!

    Michele Trager Heller Thinking of you guys and please let us know if there is anyway we can help.

    Anne Polakoff King Hang in there!

    Marci Weinberg Scher Stacy Berman Lunenfeld I will have to show him tomorrow, my night home tonight.

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