Friday, February 8, 2013

Holding Steady and Moving Forward

We have been holding steady for the past few days...making some good changes more so then what Brian filled everyone on...

On Tuesday we were watching the Ravens parade...Ian was waving to Ray well as the other players as they were being shown on the TV.

They have been doing sprints on his vent settings to get him back onto some stable settings. They started with just 2 hours to see how he would do and have continued to do them more and more often. They are now only increasing his settings when is sleeping. His vest was started on Tuesday but only with being on morphine about 
30 minutes before hand, now he is able to use it with out the morphine...this is something he was using at home twice a day but they are using it 3x's a day.

The vent was changed over from the hospital vent to a home vent (this is a LVP), in order to get him closer to moving to the floor and then to Mt. Washington. On Wednesday, his trach was changed, he is in a non-cuffed trach which has enabled him to start talking a little bit. He has come off of the dex but started on clonidine to help with the withdrawal symptoms from the dex. As of today, he is off of the oral clonidine and only on the clonidine patch which they will work on weaning him from over the next few weeks.

Wednesday was BINGO...and we know it will be our last one...bitter sweet. Ian did well and won twice...a webkinz horse which we have named Hero and Lizard Techbot (this is a Mega Bloks from the Amazing Spiderman). Ian and I had fun playing BINGO....I used his arm as a tape holder so I had easy, quick access to the tape to put on the card, he was a good sport about it. 

His x-rays have been good, each day remaining stable from the day before or getting better from the day before.

We are waiting to hear when we will be moved to the floor, I think looking at tomorrow, with a transfer to Mt. Washington on Monday. 

Looking forward to a quiet weekend...

1 comment:

Anonymous said...

Leslie Kapper Sands Great news! Keep it coming!

Tamara Jayne Flax Wonderful!!!

Laurie Fox Schimmel That is great news !!

Helen Weisman Dagilis That is great news!!

Stacy Berman Lunenfeld That is the kind of update I like to read!!! So happy to know that he is on his way to bigger and better things!

Alicia Katznelson Broth Fantastic!!!

Jennifer Larsen Orlando Great news!

Kendra Bober Two thumbs up! Great news!

Amy Eisenberg Samay Wonderful!

Nancy Polack Kaplan So good to hear some good news. You all pulled him through with your love. There's more that just medicine to get through these crises. The Ravens video was awesome. Saw Shiela in it too. Good luck this weekend and at Mt. Washington. After that it's HOME!

Bernard Margolis Marci, we're waiting to hear back from Ray Rice about a possible signed jersey for Ian

Ruth Cohen Ross So glad that Ian is in a better place. Hope all continues to go well! Good luck!