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Thursday, March 28, 2013

Quick Update

For the past few days, I have wanted to post but things have been busy with us trying to adjust to a "new normal"; at least trying to figure out what that will be. It has been hard with the holidays and the spring break for the kids. Brian and I along with the nurses, doctors and respiratory therapists have been working hard to figure out the amount of humidity Ian needs thru his vent when using the heater and the HME; this is challenging as it seems to be different depending on where he is as well as the humidity in the air.

Seders have come and gone....everyone came to us which made it easier for Ian and getting his treatments. This was not an easy task for others....so thank you.

Last night we had our first major outing as a family thanks to Casey Cares Foundation. We went to see the circus; the smiles and laughter from the kids was priceless. Check out the kids with the ring master.
The theme of the circus was the dragon along with its characteristics of "strength", "courage", "wisdom", and "heart". It is amazing how those characteristics are so fitting of many things in our lives.

Have a good night all.

2 comments:

Julie said...

Hi there! I saw that I had a new "follower" on my blog and decided to hop over and say hi. I see you are a MWPH/JHH family, so I'm figuring my favorite nurse Gila gave you my blog! :) She's so fabulous! I just wanted to let you know that your post about your son's respiratory emergency resonated with me...we went through a similar situation. It is scarier than you will ever be able to describe to people. Please let me know if you have questions or just want to vent about being a trach and vent mom. It's definitely a difficult world, but you will be great! Hang in there!

Julie

Anonymous said...

Tamara Jayne Flax I saw Ian and Becca on tv with Casey cares. Wonderful!

Debi Gersh Van Camp Awesome!