Sunday, July 28, 2013

If You Would Have Told Us....

If you would have told me 6 months ago, we would be response would have been "you are out of your mind." January, February and March had many challenges, bad times for us, to say the least. There were times Brian and I did not know if we would be bringing Ian home, we had some difficult talks with each other, morning rounds brought more unknowns, we never knew what the morning chest x-ray was going to show. Sometimes it was hour by hour, forget about day by day. Over the years as things began to change for Ian, and July 2, 2012 changed "undiagnosed" to  "VRK1" we knew we would one day be in the situation we were those 3 months, we just did not think it would be as soon as it was.

On Wednesday, Brian and I, along with one of the newest member of our village,  Ian's counselor, along with Ian drove up to Glen Spey, New York....the home of Camp Simcha Special. We were taking Ian to sleep away camp, yes SLEEP AWAY CAMP. There were some bumps in the road to get here but we did it....the past few weeks we spent washing clothes, labeling clothes, packing the bags, making stops at stores to pick up last minute things. In addition, washing clothes, packing bags for Becca, Brian and I as well. On Monday, Becca went to Florida with 2 of her cousins to spend some time with Brian's parents. So once we got Ian and his counselor settled in at Camp Simcha, met with the nurses, met the doctors, the respiratory therapies, the unit head, and many was time for Brian and I to have some time without the kids....4 days with no kids. The last time that happened....easily 4-5 years ago. 

During our time, we were in contact with Ian's counselors as well as some of the other counselors we knew thru text messages and is some of the wonderful things we heard....
  • Ian's told his counselor "I like this camp a lot you guys are my pals". Our night activity tonight was a professional trampoline acrobat show - Ian's face was priceless.  He sat up front and center with a big smile, glasses askew.
  • Ian's having a great day.  Building a glass mosaic at arts and crafts, being lifted up in the air during, dancing at the concert, and got to ride in a Lamborghini after lunch! He even clapped today after his nap. He started the day off very active. Wagging his tongue at everyone and smiling. So far so good we just went for a ride in a Bentley he had a smile from ear to ear. And got to see a Ferrari and a Lamborghini.


Look at the wave...
Another special surprise for the boys at camp was a helicopter ride, we got a video of it and was informed "He LOVED it!!"

Ian being welcomed by the wonderful, crazy counselors and staff at camp. The smile was priceless and a memory I am grateful for.
Well it is back to reality as Becca came home back to work and camp for the 3 of us, while Ian continues his journey at Camp Simcha Special...


Anonymous said...

looks like spiderman was there to greet great! I hope you had a wonderful time together and the kids enjoyed themselves!! See you soon. shannon A.

Anonymous said...

Anne Polakoff King Amazing!

Lori Kaplan That's fantastic!

Jodi Postol I am continuously amazed by this camp!!! I sent my boyfriend an email tonight. He is probably too busy having fun to write back!!!

Alicia Katznelson Broth It is a fabulous place run by a first rate organization. So glad Ian is there!

Lisa Allentoff Hess Brought a smile to my face!

Robin Dziedzic Marci, I am so glad that Ian got to have such a fun time at the camp! Awesome!

Annelise Sullivan Sounds great!

Tamara Jayne Flax So wonderful!

Sharyn Rosenberg Stein Fabulous 😍😍