My facebook post last night....I HATE VRK1...what do you tell your child as they cry to you that they are disappointed in their body...Fxck it.
Last night we had a heartfelt and difficult conversation with Ian. He was in bed, I was finishing up his nightly routine, his face told it all...he as down. I asked him what was wrong, he said he was disappointed in his body and he wanted to walk again. My heart felt. I proceeded to ask him what else was going on, he just kept repeating how disappointed he was in his body. Ian told me he wanted to talk with Brian as well so in came daddy. Ian told us both how disappointed he was, we asked him if he wanted to continue to fight, he said yes. At the same time we told him that when he was ready to stop fighting that was okay. We reminded him that he can do anything he wants with the hands and legs of others. We asked him if that was okay, he said sometimes and other times it was hard not to be able to do what he wants for himself. Told him that we understood as best as we could. It took some time but we got thru it, at the end of our conversation, Ian told both Brian and I that when we were ready to give up and not fight anymore, it was okay.
Thank you to everyone for your words of encouragement and support last night on my post. Remember: treasure yesterday, dream of tomorrow but live for today.