Monday, November 11, 2013

Hopkins... Day 1

Well we spent the weekend doing everything to not end up back in the hospital but it did not matter. We are back in Hopkins... this infection is doing a number on Ian. Every time he finishes the antibiotic, 2-3 days later he starts showing signs of infection again. He is currently on his 5th round of antibiotics since October. This time we also increased his pulmonary treatments to every 4 hours.  Starting Friday night, he has been needing oxygen every night as well as for a few hours in the morning.  We have needed to suction more often as well as there has been blood in his secretions. So after spending the weekend working with his Gilchrist team and speaking with his pulmonary team today it was decided we were out of options for keeping him home. We got down to the ER around 5:30 and finally got to a room around 11:00.

So far the chest xray looks good.  The initial virus cultures are negative. They did another trach culture, drew blood and did a urine culture. An iv has been placed and iv antibiotics will be started shortly. The goal to figure out what is going on,  the best way to treat it and get him home.

Once we were in a room,  Ian have Brian permission to go home and take care of Becca...the real reason he would not let him leave until we were in a room, I can not drive his wheelchair as well as Brian and he did not want me to have to drive it.  I love my son... Good night all.


Anonymous said...

Marci, of course you are leaving us with that bit of humor! good thoughts heading your way. I hope they can figure out the germ and chase it away!! Shannon A.

Marci Scher said...

Melody Ballan Cooper We are praying for you all. Melody and Ronnie

Stacy Berman Lunenfeld Thoughts and prayers with you all! Come home soon Ian.

Stephanie Leibowitz Weinstein Thinking of you all and sending lots of hug!!!

Shelly Thompson Thinking of you!!! I hope they can figure out what is going on soon so you can get home!!!

Lauri Harf Greenberg Always thinking of you guys.. In our prayers

Samantha Gitli Schaefer Thoughts and prayers with all of you. Hope Ian's home soon! Please let us know if there is anything we can do.

Jamie Nathanson Miller hurry up get well wishes so you can get home Ian.

Lara Wynne Sending good thoughts and prayers for a short stay, answers and Ian home soon!

Gina Cohen Thinking of all of you & hope Ian will come home soon. He never seems to amaze me with his sense of humor. Thanks for including that in your blog. If there's anything i can do, please ask.

Lisa Goldberg Burgunder Thinking of you, as always

Amy Ziman Yankellow Thinking of you all, and praying Ian makes a quick recovery and is home soon. xo

Rebecca Goldstein Thinking of Ian and all of you and sending warm thoughts!!

Tamara Jayne Flax I hope that Ian is home quickly.

Sherie Bober Rubin Thinking of you. Hope Ian gets well and is home soon

Kendra Bober Lots of love to you...

Karen Schmidt McClelland saying prayers for healing

Annelise Sullivan Prayers for you all, hope you got some rest.

Stacy Glick Alperstein Thinking of everyone! Hope Ian is home soon!

Mary Fab Thinking of each of you....

Brenda Bforsma Hanson Ian is up on the prayer page. We had to do 5 days of IV antibiotics after MJ got trached and fighting so long at home. Hope it works

Marci Weinberg Scher Yes Brenda Hanson

Sarah Burgin Fried Hope the stay is short, please let us know what we can do and thinking of you all

Edward Herban Hope you all get home soon! BTW - did anyone else notice that every man notices that women are "bad drivers?" ;) You go Ian!

Helen Weisman Dagilis Sending prayers your way for a quick sta. Thinking of you all.

Carrie Levin Weitzman Praying! How did Ian like the lemon cookie?

Leslie Kapper Sands Let me know if you need anything!~

Marci Weinberg Scher Carrie Weitzman he loved them

Sara Alima Ostrow Thinking of you all.

Mark Brodinsky So sorry to hear Ian had to go back Marci. We will be praying for the best outcome.

Amy Eisenberg Samay I'm so sorry Ian is having a difficult time, but am pleased to see he has maintained his sense of humor.

Carye George Everett Sending hugs! Let me know if you need anything!

Ina Sakolsky Leboe Hope they can find out what's going on and Ian will be home soon.