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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Marci Scher
My Beautiful Boy
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Anne Polakoff King Hope all goes well.
ReplyDeleteSherri Asher Sweet dreams
Michelle Kampler Schwartz How can someone look so darn cute wearing a sleep study cap??
Marlene Ettlin Sweet dreams to all of you!!!!!! 💤💤😴😴