Well the results are in....he did great. There were no major issues regarding his sleep study results, no adjustments need to be made to his vent settings nor oxygen needing to be added. The one concern which was brought up to us was the leak Ian has around his trache site. This came at a good time as we were heading to the ENT a few days after getting the results...so the ENT says...a few years ago everyone had leaks and it was just fine. I am not sure what is going on as now leaks are not liked. If we got rid of the leak then Ian would have no voice...well we all know that the voice he does have is soft and low but imagine none at all. Not something I want to imagine. In addition, he is currently in the largest child size trache out there, upping the size of the trache would mean a visit to the OR, not something the ENT wants to do nor something we want to do. So the leak stays. It is not causing any problems regarding his settings or his breathing.
This coming week is going to be a big week for Ian, with 2 doctors appointment (orthopedic and pulmonary), he goes back to school. Tuesday is the big day. We are looking at him going back half days 3-5 days a week. We will start off slow with the 3 days for the next few weeks and see how he does with the hopes of him doing well and getting him back to 5 days a week for 1/2 days. He is excited as his misses his friends...watch out Chatsworth...he's back.