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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene

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Showing posts from February, 2014

Posted by Marci Scher February 28, 2014

RAISE AND JOIN HANDS...JEANS FOR GENES

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Posted by Marci Scher February 27, 2014

Care About Rare - It's Just About Life

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Posted by Marci Scher February 26, 2014

Handprints Across America

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Posted by Marci Scher February 12, 2014

Rare Diseases - February 28th

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Marci Scher

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