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Wednesday, March 19, 2014

RARE DISEASE DAY UPDATE

THANK YOU FOR MAKING
WORLD RARE DISEASE DAY A HUGE SUCCESS!
Whether you had a small gathering or large public event, raised $1 or $1,000, or handed out 1 ribbon or 1,000 ribbons, EVERY effort counts and does make an impact.  That is what World Rare Disease Day is about!

Highlighted Events for 2014 include:
 
  • Our Blue Denim Genes Ribbons Created Hope All Over the World: This year, more than 120,000 ribbons were distributed all over the United States, Europe, Australia, and Africa.
     
  • ​Thousands of Global Genes Facebook and Twitter friends showed they "Care About Rare" with our customizable social media profile pictures. It was to inspiring to see so many beautiful rare faces all over the internet sharing why rare disease awareness was so important to them!
     
  • Rare Events on Capitol Hill: Over 150 rare disease advocates from all over the US congregated in Washington, DC, to share their stories and concerns to their senators and congressmen. Advocates attended the Rare Disease Caucus briefing inside the Capitol as well as joined the Global Genes team for a great night of networking at the Darlington House.
     
  • Worldwide Reach: We catalyzed many events across the nation and around the global including school-wide programs, business offices, and community events.
Although World Rare Disease Day is over, the need for awareness, research, and support continues. Let's keep the enthusiasm going and continue to encourage the world to CARE ABOUT RARE each and every day!

If you want ideas or support for continuing this important mission, please reach out to our Global Genes team.  We are here to help!

Again, thank you for joining us this year on World Rare Disease Day to build universal awareness and support for the RARE community. We know that the impact of our collective voice would not be as successful without you!

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