Thursday night was good except for Ian decided to stay up until 3am. At rounds this morning they decided to increased his vent settings again because they did not see much of a difference in his xray from yesterday. In addition they heard some decrease sounds on his left side along with what they already hearing on his right. They kept him on 40% oxygen.
Becca and I came down for a visit. Which was nice. Becca helped Ian build some legos. The child life specialist came to visit and she made her own version of bingo for the kids, they had a great time. Brian left to take Becca home and then to a friends house for dinner.
Around 5pm, Ian went in to distress again. Nothing like Wednesday night but enough. So the docs changed his trache to what is called aga cuffed trache. This will close off the "leak" he has around his normal trache and allow more air to go directly into his lungs. We hope this is a temporary trache because with the cuffed traches people usually lose their voices. He has not completely lost his voice with this change but it is a little harder to understand him. The rest of the day was better as he us stable again. They did have to increase his vent settings again but not his oxygen.
It is now 11:30pm and he is getting another treatment. I have told him that at midnight the TV is going off...I am not the most liked mommy right now. Oh well not the 1st time and won't be the last. Hoping for a quiet night.