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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene

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Showing posts from November, 2014

Posted by Marci Scher November 30, 2014

The Invisible String --- By: Patrice Karst

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Posted by Marci Scher November 30, 2014

A Gift of Love

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Posted by Marci Scher November 21, 2014

As Thanksgiving Approaches

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Posted by Marci Scher November 18, 2014

Camp Shirt Day

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Posted by Marci Scher November 13, 2014

One Like No Other

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Posted by Marci Scher November 07, 2014

Inspiration/Hero

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Posted by Marci Scher November 03, 2014

"613 & Me", Paint Ball and "New Normal"

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Marci Scher

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