Feeding Update

Ian's feeding journal is complete, a new weight has been taken, and another tough decision has been made at our fork in the road.

So what do we know. Ian eats 1-5 ounces of food a day.  His current weight is, as of February 1st, 53 pounds. Ian's last weight was about a year and a half ago at 66 pounds. At the time, he was coming off of a 6 month course of steroids. Steroids can increase your appetite and put extra weight on you. 

Ian expends very little energy during his day. Ian does get a multi-vitamin everyday. His mind is still active. He is able to tell us when he is hungry, thirsty and full.

At this time, we don't have a good feel for his true weight lost over time because of the 66 pounds being steroid induced. When Ian eats, he seems to still be enjoying it. He is drinking and getting additional liquids through his g-tube. Brian and I did a lot of soul searching and talking yesterday. 

We have decided to give Ian a month to do what he wants, eat, drink and be merry. We will re-weigh him in a month.

Treasure yesterday, dream of tomorrow but live for today.