Today has been good, made some progress and one backwards move. He is off of the fentanyl medicine but now on morphine. He has gotten some lasix to help get rid of the extra fluid he has retained over the last 2 days. In addition, they tried to change his trache from the cuffed one to the uncuffed one (which is his usual one), however, Ian was not ready for that. He handled that for about an hour however, his breathing was labored and increased so the decision was made to change him back to the cuffed trache. Once this was done, Ian's breathing was not as labored...slowly getting back to normal. In addition, his pain was out of control for a little bit this evening but with an extra dose of morphine he is good to go...I keep asking if the mother can get some of the good pain meds...but they frown upon that.
For all of those Camp Simcha Special people out there....we have a wonderful doctor taking care of us tonight....Dr. L is in the building.
Have a great night, we are hoping for one here.