Monday, May 25, 2015

A Close Call

Today started out like any other.  Ian was at Gilchrist still finishing up his respite weekend so we took Becca out for breakfast before going to pick him up. Half way through our meal we get a call from the nurse at Gilchrist. She tells me that Ian has taken, as she put it, a turn.  I ask what specifically that means and she tells me his heart rate is irrational, SATs are dropping, very lathargic and hard to arouse and they can't find a pulse.  So I ask what that means and she says you want to come down here.  So Brian gets the check and within five minutes we are in the car and on our way down to the Gilchrist center in Howard County.  During the drive I'm trying my best to stay calm and to make sure Becca is calm all the while not watching the speedometer, yes Brian was driving.  We get to the center, park and run in and to his room not really expecting what we are walking in to. When we enter his room Ian is awake and seems alert. His heart rate is in the 120s, somewhat typical for him, and his SATs are mid to upper 90s and on 4 liters of oxygen.  Ian's Gilchrst doctor and nurse have been called and are on their way in.  While we are waiting and talking to Ian, Brian notices the nebulizer is hooked up incorrectly to Ian's vent tubing.  We ask the nurse about that and are informed as far as she knows it has been that way.  That basically means Ian has not received necessary albuterol treatments most of the weekend.  Without these treatments the chances of Ian going in to distress greatly increase because all of his secretions are building up inside him.  So for the next couple of hours we work to reduce the "damage" that has been caused by this and Ian responds very well.  So well in fact that Gilchrist was able to arrange an ambulatory transport for us to get Ian home.  At this point, here we sit while Ian is resting comfortably at the moment and try not to think about how close we came to losing our precious little man today.  Yes the next few days will be rough as we continue to treat what has been caused but we'd rather do that then not have him here with us.

We had a few good conversations with a few of the staff and they are already working on how to make this situation a learning experience...

Treasure, dream, live...


Marci Scher said...

Scot Lippenholz WTF... Glad he's ok.

Sherie Bober Rubin Oy!! Glad he is doing better

Heather Schmidt Young So glad everything turned out well!

Deana Munchow Oh my gosh...what an absolutely terrifying time. I can only imagine... So glad it was a quick fix for a serious issue.

Laura Monfried Egerman Glad he's doing better. That's so scary.

Marci Scher said...

Sheri Knauth You are his strongest advocate, his greatest anchor and most amazing Mom. Sending wishes for healing to Ian and the entire family.

Samantha Gitli Schaefer Oh my goodness Marci, how terrifying for all of you. I'm so glad he's improving. Wish your weekend didn't end with such a scare.

Sharyn Rosenberg Stein Sending love and prayers

Annelise Sullivan Oh crap. Glad he's improving. I feel like reading this post, I could almost feel what you were going through today.

Elena Lucini French Way too scary! I'm so glad he's home and recovering!

Irina Brusilovsky Goldsmith Thinking of you!

Marci Scher said...

Stacy Berman Lunenfeld Glad to know he's home and hope you got some well deserved and needed rest this weekend.

Jessie Voss Xoxoxoxxoox

Brenda Bforsma Hanson Glad he bounced back

Debi Gersh Van Camp Sending Ian big hug! Xo

Tamara Jayne Flax Too close of a call!

Marlene Ettlin So scary. Thank Goodness he's ok.

Melissa Klawans Cohen Ok...That was scary. Tomorrow is a new day.xoxo

Sherri Asher I am sorry that this happened and glad he is now home with all of you!!

Jodi Postol Give my boyfriend a big smooch from me. Glad he is doing better.

Helen Weisman Dagilis So scary. Glad he is doing better. Thinking of you guys!

Sandra Huller ����

Alyssa Faye So glad he's okay! Thinking of you all!

Ezra Aaron Buchdahl Wow. So sorry that happened to you all. Glad he is ok!

Heather Smith Macchia Very scary. Thankful he is better and home

Traci Kodeck So scary. Glad the day is ending better than it started.

Melissa Leon Good grief! Glad Ian is doing better. So sorry you had to go through that.

Denise Zemlak Beveridge Glad all is OK!!!

Laurie Fox Schimmel How scary!! So glad he is ok!!!

Anne Polakoff King Wheww!

Leslie Middleman Toll How horrible! It makes me sick to imagine what you were going through until you finally saw him. Glad he is doing better.

Sallie Brovitz-Palmer So glad he is doing better! Thinking of you all!

Sara Alima Ostrow How scary! I'm glad he is ok.

Julie Berman Katz No words, except thank god. Hugs to all

Gina Cohen Thinking of all of you. Xoxo Ian is a real superhero

Lisa McCarville D'Antonio Yikes and wow ... (((HUGS))) I'm just flabbergasted heart emoticon

Heather Lev So glad everything is,ok. Sorry you all went through that and he bounces back from it as the fighter he is!! Xoxox

Karen Schmidt McClelland so traumatic....sending healing prayers his/your way.

Lara Turkel Fruman Sending hugs…I am so sorry you all had to go through this.

Michael Kiewe Crazy and I will just leave it like that thank god

Sharon Evnitz Gross Glad everything is improving!

Michelle Kampler Schwartz 1. Wow 2. So sorry this happened. 3 wow that you are working w Gilchrist on this. 4 glad Ian is improving.

Renee Valentino Block You guys are a courageous family. I truly admire you, Marci. So sorry for this set back. Glad Ian is doing better.

Melissa Hicks Willen Good lord is all I can say. I'm hoping everyone has a very peaceful rest tonight after that.

Amy Frid Moore Sending hugs!!! Thinking of all of you heart emoticon

Alicia Katznelson Broth Oh wow. {{{hugs}}}

Marci Berman Platt You are so strong and inspiring. I'm so glad to hear that it turned out ok.

Tara Donnelly-Walulik Glad things are getting better... Keeping all of you in my prayers!!

Kim Brandwin I'm glad Ian is better!

Audrey D Kline So glad you arrives to a better scene and a recovering Ian. Scary that could happen there!

Tom Peace Jr. Wow you are very strong. The Peace family is keeping Ian and the Scher's in our thoughts and prayers.

Nancy Polack Kaplan I think they have some explaining to do. How could they give you a call like that when he was doing ok? Putting you through that is inexcusable. So sorry and glad it turned out ok and manageable.

Arlene Stein I am so glad it turned out ok, hope Ian is feeling better. But someone is at fault.

Carye George Everett I am glad you guys figured out the problem, but am sad that you guys had to go through such a scary moment. I will continue to pray for all of you as you go throughout the next few days. Send you hugs!

Jamie Nathanson Miller Wow, what a scare. Wishing Ian an easy week.

Alan Guttman Relieved Memorial Day remains a day to remember fallen soldiers. Ian fights on!

Linda Chupnick Thank G-d he's much better now. Prayers for all of you.