Thursday, October 8, 2015


Pain comes in all shapes and sizes, all ways and places. This week pain seems to be our biggest challenge. There have been many days where getting ahead of the pain is all we are trying to do.  All our tricks, (ice packs, capsasin cream, fan, feet being uncovered) don't seem to be working. There are many things about managing Ian's care which are difficult and emotional for us...for me one of the hardest is seeing him in so much pain that he is screaming and yelling "my feet are on fire". Today, when asked to rate his pain on a scale of 1 to 10 with 1 being the best and 10 being the worst, he was at a 10...this has not happened before. We have been working closely with his hospice team and all of his pain medicines have been increased over the last few days. We are hoping that the increases will help Ian's pain come down from a 10 and for us to be able to manage it. 

Make some memories this weekend, I know we will. Treasure, dream, live. 

1 comment:

Marci Scher said...

Annelise Sullivan Hope he feels better and can get some rest.👣😞
Marci Weinberg Scher Thanks. He has gotten a lot of pain meds today that it finally hit him and he's sleeping

Susan Heneson Kornblatt I hope he feels relief sooner than later. And that you in turn will feel better as well.

Leslie Middleman Toll I can't even imagine :( I hope those meds do the trick.

Julie Berman Katz Saying prayers for you all.

Karen Unger Frazier <3

Anita Spivak Rozenel Sending prayers your way.

Mindy Hammerman Lipsey Hope you get ahead of it.

Gina Cohen Thinking of you & hoping for some relief for my little super hero

Ezra Aaron Buchdahl Thoughts and prayers

Marci Phillips Thinking of you all.

Marlene Ettlin Hope he gets some relief soon. ❤❤

Sandra Huller ❤😞❤🙏❤😕❤🙏❤❤❤❤

Deana Munchow Hoping he feels relief soon.

Jennifer Larsen Orlando Hope he starts feeling better soon.

Janel Guilliams Burns Hugs!!! Thinking of you all and hoping he gets some relief!

Sara Alima Ostrow Hope he has relief soon. Keeping him and you all in my thoughts and prayers.

Debi Gersh Van Camp Prayers! Hugs!

Renee Valentino Block Hang in there, Ian. Feel better soon

Heather Schmidt Young I hope you can figure out a good combo for him and he gets relief soon!

Steve Lunenfeld Hope Ian's feet feel better today

Edward Herban Hope he feels better. I remember a few years back seeing a treatment for diabetic neuropathy using an industrial strength capsaicin cream (nearly 100% capsaicin). The treatment required an anesthetic but, ultimately, once both the anesthetic and the cream wore off, the pain associated with the neuro damage was gone. I'm not sure if the treatment ever made it to mainstream, but it's worth looking into. I'll see if I can find the article again.

Anne Polakoff King Not fair.

Nancy Polack Kaplan Hoping today is better for him.

Connie McElroy Lippenholz Sucks :( hope he's feeling better soon.

Keira Silberstein Praying you guys have a better day today!!

Jill Pelovitz I pray for your families strength and Ian's relief of this pain. I know it is so difficult to see your child in pain and to feel desperate to help him. I am sure even your presence is a great comfort.

Michelle Kampler Schwartz I hope you've found some measure of relief - both for Ian and the family - by now. ..