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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Showing posts from December, 2015
Posted by
Marci Scher
24 Things People With Rare Diseases Wish Others Understood
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Posted by
Marci Scher
A Huge Thank You Chai Lifeline
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Posted by
Marci Scher
Bling, Bling, Bling
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Posted by
Marci Scher
A Fishing We Will Go
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Posted by
Marci Scher
Anyone Have the Time?
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