Isaac's Back
Isaac is back
On the 1st night he decided he wanted to go to school with Becca. Well that did not happen. He stayed home where Ian could make sure he stayed out of trouble. 
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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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