I am having a very hard time emotionally dealing with all of this, on top of winter approaching. Is this our new normal? Is he still recovering from the pneumonia, sepsis and now the cdiff? Only time will tell. Putting emotions into words is hard. I'm scared, angry, worried...but at the same time, I know how much I love him. Watching him fight every day, is heartbreaking while empowering. My heart hurts and feels empty today. You try not to think about where the future is taking you, especially when you know it is devastating for him. When will that time come, no one knows. All we can do is continue to make the best of every day and every minute he is here.
His smiles don't seem to be as strong. He is not getting his tongue out as far as he was...I think his muscles are getting weaker. His energy level is decreased...at least for the time being. He appetite seems to be less...again is this all a new normal or still recovering.
Only time will tell. Sorry if this post seems to be all over the place, but that is where my mind and heart are.