The world lost an amazing person today. At 7 am, September 15, 2016, my son Ian Alexander passed away. For 13 long years he put up an extraordinary fight against the rare disease that was breaking down his body. During that same time Ian touched many lives in many ways. He gave us so much joy and happiness over all those years. Even during his most painful days he was able to smile some and make us all laugh. Just being able to call him my son, even for such a short time, makes my heart fill with joy and honor. I am very proud of the person Ian was and the man he became. We always told him there was nothing he couldn't do and he believed in that. His favorite superhero as we all know was spiderman. But I think we can all agree Ian was the true superhero.
Ian, my son, my hero, you are free from all your burdens. You are free to move and run about the world as you see fit. No more medicine, no more turn machines and most importantly no more pain. This is all Becca, mommy and daddy ever wanted to for.
We are blessed to have had you as our son and as an inspiration. You will always live forever in out hearts, minds and souls. You are my true superhero, you are SpiderIan.
I love you little man, my best buddy forever and always.