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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Posted by
Marci Scher
Signed, Sealed and Delivered
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Marci Scher
The Most Wonderful Place on Earth
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Marci Scher
SMA and PCH - A rough weekend
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Marci Scher
One Down - One to Go
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Marci Scher
Follow - MD Appointments
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Marci Scher
The Bob Marley Quote I'd Go Back and Tell Myself When My Daughter Was Diagnosed....by Terra Atkinson
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Marci Scher
Another Year...6 Years....3 Years
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