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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Posted by
Marci Scher
Rare Disease Day - February 28, 2017
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Posted by
Marci Scher
To piggyback off Marci’s post.....(BY Brian)
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Posted by
Marci Scher
In Honor of Ian's Memory - by Wyatt Sherman
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